EEG

I was just now able to upload Ben's regatta win. We were so excited!

Now, on to the EEG. Two words: NO FUN.  There is always humor in stressful situations.  When the pager went off around 8:30 am, I was asleep in the chair.  I was so disoriented that I almost fell down, and they asked me if I needed a wheelchair.  Nice. We both woke at 3 am,  so by the time the tech started mapping her head and attaching electrodes, she was hysterical.  Listening to your child scream for 30 minutes straight and watching tears stream down her face is horrible.  I feel so bad for those mothers out there who go through this weekly or see their child in pain constantly.  I can't even fathom what they go through. 

Once the electrodes were on and no one was touching her, she was awesome.  Passed right out.  Thank you God.  If I had to go through it again, I would need a sedative.  Of course, I was standing over the tech's shoulder the whole time asking if everything was normal.  His response?  "The doctor will give you the results, ma'am."  I already knew the answer, but sometimes I can break people down enough to give me a "looks normal to me".  No such luck.  She has no signs of seizures, but the docs are just ruling everything out.

Before

After

And then we went to breakfast and took long naps and all was better.

2 Corinthians 4:16-18:

“Therefore we do not lose heart.

Though outwardly we are wasting away,

yet inwardly we are being renewed day by day.

For our light and momentary troubles

are achieving for us an eternal glory

that far outweighs them all.

So we fix our eyes not on what is seen,

but on what is unseen.

For what is seen is temporary,

but what is unseen is eternal.”

Lovin' This Weather!

We had an early start this morn (thanks to Ms. Sadie), so we saw daddy off to work and walked on the new trail to the park around 8 or so.  Ben walked Louis and I strolled Sadie.  Poor Louis was so worn out after his long walk! There was another Boy Scout troup at the park, so Ben made a new friend! We arrived back to the house after an hour and a half, put Louis in his kennel and brought daddy and his co-workers some fresh cookies from the local bakery.  We then grabbed a quick bite to eat, and now Ms. Sadie is napping soundly and Ben is drawing.  Sometimes Saturdays are so perfect.  Ok, it would have been REALLY perfect if baby girl had slept past 6 am, but I'll take it.

 

 

 

 

I haven't updated on Sadie in a while, so here goes...
She now has 7 doctors (pediatrician, neurologist, geneticist, opthalmologist, chiropractor, pediatric dentist, and development pediatrician) and 5 therapists (6 if you include her horse Chico, and I don't see why he should be left out).

Whew! That's a lot. 

She is FINALLY wearing her glasses all day, but it took some serious fighting.  That girl is stubborn!

She has an EEG and some more genetic testing coming up.  Please pray that she cooperates with the EEG.  We were instructed to get her up in the middle of the night, so she would just pass out during the test.  Should be a party!

Otherwise, she is healthy and happy and loves to be around other kids.  Louis is always next to her the minute she wakes up.  He is such a protective dog.  He doesn't even flinch when she pets him HARD and pulls on his ears, etc.

Happy Friday!

Raingutter Regatta

Yesterday, Ben's Boy Scout pack had their annual regatta race. Greg and Ben worked on the boat all week, with Ben doing most of the work.  He painted and decorated it by himself, with a few tips from Dad.  The whole family (including Louis) headed to Teague park on Saturday morning to have the boat registered and inspected.  There were over 50 entries, so it took a looong time before Ben's boat sailed.  But sail it did.  It was so awesome to see him win!  He won for the Wolf division and then won second place in the championship race! He was so proud to add that first place ribbon to his uniform! The boys had lunch and played afterwards until Sadie let us know she was ready for a nap :)

 

Happy Birthday Mom!

"God bless you and keep you,

God smile on you and gift you,

God look you full in the face

and make you prosper."

(Numbers 6:24-26)

To a wonderful mother and grandmother. I hope this next year of life is full of blessings!

Glasses!

Today, we purchased some new glasses for Ms. Priss.  She decided the expensive wire frames weren't for her (her daddy's frugal voice was whispering in her ear), so we went with some plastic frames.  She only kept them on for 20 minutes, but we will work with that.  They are bifocals.  I can only imagine how difficult of an adjustment this must be for her. It is so important for her to wear them right now! Our only backup option is surgery :(  Doesn't she look thrilled?

Last night, Sadie had a friend sleep over ;) 

We played with dolls, watched Barney, and read LOTS of books. 

Sadie received so many books for her birthday, and we have read them all!

She loves to be read to, as does Emily (which is why you see Em sitting in her lap!).

We made a "bed" on the floor of our bedroom for Sadie.  Everytime I checked on her, she was in a different part of the room. I think she would have rolled into the bathroom if she could have fit through the doorway! Her new nickname is "Roly Poly".  She woke at 5:30 this morning.  I found her beating on the closet doors.  Not a problem for me, since I was already up, but she is over-tired today (to say the least).  Thank goodness, we didn't get kicked out of church (yet...).  Her screams can be quite loud.

In other news, Sadie will be sporting some bling this Fall.

I'm really into all the sequined stuff for little girls!

I did feel a little guilty today when I looked at Ben and realized his polo was 2 times too small.  Time to go clothes shopping for him (although he will refuse to participate)!

Yesterday, I took out some of my Fall decor and bought a few new things.  I love pumpkin spice candles! Greg will get the Halloween decor down soon (so he tells me).  If you think I'm getting in that crawl space he calls an attic, you are WRONG.  I am terrified to go up there.  The kids Halloween costumes are already purchased, and Ben wears his everyday.  I love how I get my money's worth with that child.

A wizard and a witch.  Not really church-friendly, I know...

Greg wasn't down with buying Louis a costume, but maybe he'll get the Halloween spirit soon!