Thursday, April 14, 2011

Truth Be Told

When I was a child, I was so interested in children with special needs. Really. I remember thinking I could have a child with Down's Syndrome or any other syndrome.  I think God listened.

Sometimes I tell God "You chose the wrong person. I can't do this. It hurts too bad.".





Sadie had a very detailed exam at the developmental pediatrician.  Her diagnosis was a little hard to hear.

Congenital Cerebral Palsy
Mental Retardation
Severe Hypotonia

It's never easy to process, and it has taken me at least 48 hours to swallow the prognosis.

On the positive side, having this diagnosis will help Sadie get more therapy :)  I refuse to drown in this.  It only fuels me to try harder to help her.

I love her more than I can say.  She is such an amazing child.  I can't wait for her to get up every morning.  She is missing her daddy so much and calling every man she sees "dada".  I can't wait for him to get home :)

7 comments:

Melissa said...

I'm thinking of her constantly, thinking of you and Greg and Ben too.
She couldn't wish for better parents or brother. I love her with all my heart- she is so precious to me as is Ben. You have the most beautiful special children.

Mom said...

She has an amazing Mom, Dad and big brother. I love you all so much.

Anonymous said...

You are amazing and have such a great support group. I do think God picked you and Greg. Big bro Ben too. Thinking of you, Rhonda

Amanda said...

God gave you that precious angel because he knew you would be the best Mom for her! You are a stong amazing woman!

rachel said...

darlingest sarah,

there are a thousand things to say, but in the long run, it's just a bunch of filler for this: you guys are so amazing, and while so many things in this life make no sense at all, there is love and grace in incredible abundance. you are in my thoughts and prayers daily. God has a plan, and it's always to love us into a new, fertile, hopeful, and incredible place. you guys are on a strange journey, for sure. but you are making progress, even when you have to crawl, or fall into the arms of Jesus, so that Love can carry you. i hope i get to hug your neck, soon. kiss those babies.

love,
rachel

Cindy said...

I have said it many times... You are such an amazing mom!!! Many prayers are being sent!!!
I love you :)

Christina said...

God did choose the right mom for Sadie! How else would be so determined????